Confronting the Unknown
“He has a difficult time concentrating.”
“He’s having a hard time completing his schoolwork during class time.”
“He has a hard time remembering and following directions.
I’ve been hearing these sentences alot in the past few months. At first, I assumed it was the newness of kindergarten as well as a change in his routine. When it persisted, I chalked it up to him being the youngest in his class. I thought I’d give him some time to settle down as well as settle in. We started working on extra projects to reinforce what he was learning in class. We’d work each day in a quiet place, free of distractions. And yet, amongst optimal conditions at home, Seth has had trouble finishing worksheets that should only take 10 minutes to complete.
We also started taking morning walks or playing games like “red light, green light” in hopes he’d burn off some of that extra energy before his afternoon school sessions.
I started buying organic, thinking his lack of focus and constant movement might be due to the plethora of preservatives found in food today.
There have been days he’s done well at school — completing tasks and keeping focused. These good days gave me hope and caused me to wonder if my worrying was for naught. But at this point, I can no longer deny — even with a “good” day thrown in here and there? I’m still hearing the same types of sentiments from his teachers. He’s progressing but not nearly as quickly as his classmates, and that’s with extra help provided by the school. I still see alot of the signs at home. Seth is very social. He’s very sweet. He learns quickly — when he really listens. But… he’s struggling.
It is time to admit that something is “off.” He definitely needs to get tested for learning disabilities. Kids diagnosed with Sensory Integration Dysfunction typically have other issues that surface over time. So I’m not surprised we’re traveling this path of speculation, research, and testing again.
Is it ADHD? Is it an auditory processing issue? Is it something else? Is it a combination of issues? I don’t know. I have some ideas. But I’m not certain.
This period of limbo conjures up many memories. I remember years ago, feeling intimidated by the various channels we’d have to go through in order to get Seth testing and treatment. I remember setting up occupational and speech therapy sessions and asking therapists countless questions on how I could reinforce their efforts. The task seemed daunting. My biggest fear was I’d fail him. But day after day, month after month, this little boy progressed. Within a year’s time he had vastly improved, catching up developmentally to his peers. (In many aspects, he was even well ahead of his peers.) He was a much happier child. I was a much happier (and thankful) mom.
I now know that the unknowns are much scarier than getting a diagnosis. This quest will require more work on Seth’s and my part. There will be more power struggles and expressed frustration. There will be more meetings with the people who can help him as well as more trial and error. But there will be good days too. We may get through it clumsily, but we WILL get through it.
We’ll just have to tackle it the same way we did before — one day at a time.
Today I’m thinking of Wisconsin babes Cheryl, Ree, Dana, and Virtual Sprite. Go Packers!






MammaLoves on 21 Jan 2008 at 1:40 am #
Coincidentally, we have an appointment with the pediatrician tomorrow most likely for an ADHD diagnosis–in our sixth grader! Sixth grade? Did no one notice this before???!!! I’ve been asking questions all along.
Maybe it’s better to deal with it now? Before Seth learns not to like school?
Anyway, I with you.
And this parenting thing?? Some days it’s way harder than I thought it was going to be.
flutter on 21 Jan 2008 at 1:41 am #
The unknown is the scariest part, isn’t it?
Dana on 21 Jan 2008 at 3:57 am #
Thanks for thinking of us. It’s totally sad we lost, but we are stronger than ever and next year is our year.
mayberry on 21 Jan 2008 at 4:35 am #
It doesn’t seem fair, does it! I hope you get some answers, though. Better to get help earlier.
Heidi on 21 Jan 2008 at 7:07 am #
Hey there,
My boy has a nonverbal learning disability and an ADHD diagnosis. He was diagnosed in grade 1 which is considered quite young. To have your son diagnosed in Kindergarten would be exceptional. Our psychiatrist says that at that age, they are really still quite immature, and a lot of it can be simply developmental differences. The fact that Seth is the youngest in his class is HUGE. A year could make all the difference, you know!
Having said that, if the teacher is persistent that something is wrong - then there is usually something there. It is definitely worth getting checked out. There’s no danger in at least looking into it.
It is hard when you realize that your child isn’t ‘perfect’ (at least in the eyes of the world - every child is perfect to his/her parents).
Also, there are lots of hard times, when people misunderstand your child, or judge without knowing the full story. I don’t want to sugarcoat that part.
But I have to say - my boy is so amazing. Because of these weaknesses that he has in concentration/learning, he learns in ways that no one else does. He baffles and inspires me daily.
He is able to do math in his head that kids years ahead of him cannot do. He can do it, I think, because he does not have the concentration skills to even write down the numbers. It is odd and funny, and awesome. I think the brain tries to compensate, and it is absolutely amazing what it is able to accomplish.
You are such an ‘on-the-ball’ mother. Seth will thrive and do very well. So try not to worry too much
Hugs, Heidi
Nicolle on 21 Jan 2008 at 3:41 pm #
answers, although sometimes scary, are def. better than questions unanswered.
our thoughts are with you guys.
Alissa on 21 Jan 2008 at 4:15 pm #
((hugs)) for you and Seth.
But.
Is it possible he’s just being a kid? A little boy? Or perhaps he’s bored? Drew has “difficulty paying attention” and “not focusing well” and “talking out of turn” at least 2-3 days a week on his progress sheets, but he’s still doing well academically.
Isabel on 21 Jan 2008 at 4:46 pm #
You guys are a great family. And you’ll do this together. Yep, one day at a time.
Michelle at Scribbit on 21 Jan 2008 at 5:50 pm #
Good luck with everything, I can only imagine how hard this has been and will be for you!
And btw, though I haven’t been commenting I still read! I’ve just been using my feeds and have been swamped lately. I’m still here! Haven’t disapppeared on you!
Susan on 21 Jan 2008 at 7:25 pm #
I was going to suggest diet changes but then as I kept reading, I saw that you broached that area already. My next question would be how large is his class? Could it be that the teacher has too many kids under her charge and maybe the “boy” in him is too much for her to handle? It may not be that way in your boys in case but I have read so many instances where teachers just want that control and don’t have the time and patience for the individual personalities so they lump the spirited ones in the the ADD category. I’m sure as good a mother you are you probably have considered all of this but it’s just a thought. Either way I will keep your family in my thoughts and prayers.
Oh, The Joys on 21 Jan 2008 at 8:15 pm #
I’m sure you must be worried… I’ll keep you in my thoughts.
xo,
J
abunslife on 21 Jan 2008 at 9:07 pm #
You are his mom for a reason, and you are his best advocate. Something has been nagging at you for a long time. It is better to get some answers one way or another so you can get a game plan and move forward from there. It could just be the teacher, (she could be a more helpful!) the classroom environment (which I still think is problematic) and his age or it could be the other concerns along with these things above making it all intolerable. Get your game face on and get ready to kick some ass to help Seth get what he needs. You can do it and so can he!! Hugs.
mamatulip on 21 Jan 2008 at 9:21 pm #
I’m sorry that you’re going through this. I really am.
I gotta tell you though, what I get from this post is a mother who is deeply devoted to her son. The love coming from this post is beautiful, MWM.
j on 22 Jan 2008 at 1:51 am #
the anticipation / not knowing is totally terrifying. My thoughts are with you!
Linda on 22 Jan 2008 at 6:19 am #
Go with your “gut instinct” — if you feel like Seth needs help, he most likely does. And it is great that you are on this early; my son didn’t begin to get the help he needed till seventh grade because when I saw some of the problems you describe and I asked his elementary-school teachers what I should do, they had no answers. I did try to have him evaluated in (I think) third grade, but at that time I didn’t realize that the school didn’t want to admit anything was wrong that they would need to work with (and pay for). The wait caused my son enormous frustration.
Two excellent resources to get you going: The “Great Schools” site:
http://www.schwablearning.org/resources.aspx?g=1&s=2
…and the book “Wrightslaw: From Emotions to Advocacy, 2nd Edition,” by Peter W. D. Wright, Esq. and Pamela Darr Wright. This gives a huge amount of insight into dealing with schools.
Good luck! You are a wonderful mom to see the problem early and work to help your little boy.
Kathy on 22 Jan 2008 at 12:18 pm #
Lisa,
It sounds like you are doing all the right things to get Seth the help he needs. Remember there is nothing wrong with asking for help. That is why the scholl districts employ those folks. You are just helping to stimulate the economy.
Every child is special in his/her own way. Seth may never be the smartest kid in the class but that does not mean he won’t be a happy child and a successful man in time to come. We will keep you, Marc, & Seth in our thoughts and prayers.(I know prayers are not your thing, but they are mine, so bear with me) Keep your head up, after all your a Clinton County girl, we can handle anything.
Kathy
Kathy on 22 Jan 2008 at 12:20 pm #
Lisa,
It sounds like you are doing all the right things to get Seth the help he needs. Remember there is nothing wrong with asking for help. That is why the school districts employ those folks. You are just helping to stimulate the economy.
Every child is special in his/her own way. Seth may never be the smartest kid in the class but that does not mean he won’t be a happy child and a successful man in time to come. We will keep you, Marc, & Seth in our thoughts and prayers.(I know prayers are not your thing, but they are mine, so bear with me) Keep your head up, after all you’re a Clinton County girl, we can handle anything.
Kathy
Nancy on 22 Jan 2008 at 6:30 pm #
It’s tough to be faced with these questions about our kids, isn’t it? Sounds like you’re handling the discovery process gracefully and providing such support to Seth. We’re facing some of our own discussions about Rosie beginning this week — to see if there’s something more than just the speech delay going on. We’ll see how it goes.
jaelithe on 23 Jan 2008 at 1:38 am #
I am glad you are listening to your own instincts and getting this checked out.
It may be, too, though that this school is just not the right fit for Seth. I remember how you described his open classroom setting, and it seems to me that sort of environment would be EXTREMELY distracting to a child with sensory issues– even a child who has had years of therapy to help him overcome his sensory issues. And if he is having a hard time at school because he doesn’t work well in that environment, his feelings associated with his struggle to perform may have given him a general dislike for doing schoolwork. He may THINK he can’t do worksheets, even at home, because people at school have been TREATING him like he can’t do worksheets.
My son’s preschool music class teacher recently told me about an educational study that was done years ago where, at the start of a school year, teachers were given a list of students with performance assessments for the previous year’s behavior written next to each name. Each student was labeled POOR, AVERAGE, or GOOD. And at the end of the year, each student had performed exactly according to that label.
But, the labels had actually been randomly assigned, and had nothing to do with the kids’ actual behavior the previous year. The kids performed just how the teachers expected them to, because the teachers expected them to behave that way. It makes me wonder how many kids with attention problems are actually just really discouraged by their classroom environment.
cagey on 24 Jan 2008 at 10:25 pm #
Whoa. I just clicked over here and you have been updating! I wonder what happened to my feed on Bloglines.
I hope things are well and I am updating my reader.
Hang in there with Seth!